Could I Ever Be Medication Free?

One could hope. But I was reading through Hopeful Hellion‘s own experiences with someone who had bipolar and it rather shook me awake. I’m not going to be one of those who can risk going off of meds. There are some people who can go off meds and control their bipolarity, others will always need the help of meds, and then there is a third category of people who should not go off their meds. I see myself as falling into that third category. Why is this? Because I can become psychotically paranoid and start cutting myself again.

It really took a while to sink in, but the man in her article could very well have been me if I didn’t place a timely phone call to my psychiatrist and got immediate help. And after reading it, it’s sort of provoked a full realization of what my mind is capable of doing. It’s not pretty by any means. It’s made me realize that the game has been changed considerably with the addition of psychotic manias. What’s worse is that I’m looking back now to when I had a paranoia attack while on risperidone, and I wasn’t in any kind of mood. I was reasonably flat and completely stress free. Which ups the ante from bipolar to schizoaffective disorder. I’ll have to talk to my psychiatrist about that. And this latest time around, I wasn’t horribly stressed either. So stress does not seem to be a primer for psychotic episodes.

I can only guess at what this means, but I have a suspicion that I’ll always have a bottle of antipsychotics lying around the house just in case. I seem rather lucid in the beginnings, so if I catch them early enough, that’ll be enough to stop them cold. But my mood swings will definitely potentiate another psychotic episode. So the question becomes, will I ever risk going off of medication with the risk of psychosis on the horizon. The answer is a definite no.

It breaks my heart to think that, especially since I was considering a drug holiday for a while, but the risk is just too great. I cannot put my life in jeopardy that much by foregoing medication. Some people will be able to go off medication and succeed, but that’s not common enough to make me think that I can do it. And even if I were to go off medication and find all my triggers, like I did with my migraines, when then? I would have to risk  another episode in trying to find out what works and what doesn’t work. And I never ever want to go through another episode. It left me sobbing while calling the doctor’s office because I was so frightened. Which is a key element in all of the episodes that I’ve had, pure fear. It took everything to get to my doctors and I was hell bent on getting there only because I saw it as a safe place. If my mindset had been slightly different and I didn’t implicitly trust my psychiatrist, I probably would not gone to see him. I would not have gotten the help that was needed or the drugs that helped quell the paranoia. I would have been home, alone, scared, cutting, and perhaps finally killing myself just to make it stop.

I also have to think about my girlfriend. She’s already been through enough. I can’t stand to think of putting her through another episode of depression or mania. She’s already been through the worst of it with me and I can’t bear the thought of putting her in the situation with an unmedicated version of me either going manic and psychotic or depressed and suicidal. I want these extreme parts of me cut out.

The drug of choice right now is lithium. I’m getting down to only that so I have a baseline to compare other drugs to. My mind has been so fuzzed out on antipsychotics that I can’t remember what normal thinking is like. It’s just been a mishmash of symptoms and side effects. And really, being on lithium is the lowest that I will ever go towards being unmedicated. The research that I’ve pulled up on it shows that there are no memory deficits associated with the drug that is not explainable by the progression of bipolar disorder. It’s a safe drug when taken properly with regular blood tests, and it’s the only proven drug with anti-suicidal properties. I’ll wait to see in the long run how well it manages my manias and depressions, but it’s the lowest I’ll ever go towards being unmedicated. I feel that I just can never risk going without medication.

About James Claims

Student of philosophy and mathematics at UW Madison diagnosed with Bipolar 1. I'm particularly interested in philosophy of science as of this moment as well as the intersection of academic life and mental illness.

Posted on December 15, 2011, in Bipolar and tagged , , , , , , , , , , , , . Bookmark the permalink. 6 Comments.

  1. Don’t let it break your heart. I know what it’s like. I asked my doctor once, closer to the start of treatment, if I would need medicine for the rest of my life. When he answered, “Yes”, I was completely disheartened. But, when he used the biological model to make it akin to a physical disease that required maintainence medication, I didn’t feel so bad. That’s what it’s like.

    I am one of those people that will never be able to live a productive life without medication. I saw it getting worse as I got older. I can imagine what my fate would have been.

    But, here’s a fact for me. I’m going to have to go off all of my medication and probably soon. I want a second child. There is no medication deemed safe for pregnancy that would be useful.

    I haven’t started stepping down yet because I’m scared. What is going to happen? I don’t know and I know it’s not going to be pretty.

    The only positive is that pregnancy seems to agree with my mental states. I wasn’t anymore moody or irritable than non-Dx pregnant women are! In fact, I maybe was less so! LOL!

  2. Hi James,
    I’m also a student at UW-Madison — thanks for taking the time to comment on my blog.
    I’m glad you’ve come to terms with taking medication, not only for yourself, but for people who care about you. I read Kay Redfield Jamison’s books on her experiences with bipolar disorder and particularly remember how she struggled with the decision to stay on medication. It seems especially challenging to understand the risks of going off meds when we aren’t acutely symptomatic.
    Best wishes to you and thanks for blogging about your experiences.

  3. I had to go off my meds when pregnant with my daughter. By month 8, I was in such bad shape, they determined the risk to her was lesser than the risk to me. Then I decided to take a med holiday because all the side effects were crippling me…and thus my descent into Hell began. I am surrounded by people who say they beat their mental illness without medication, as if I am just weak willed. I know who I am, and that mousy paranoid mood swinging version is my illness, not me. I don’t know if I will ever be able to go off meds,it has not proven to be a good idea in the long term. I know I NEVER want to return to that shell of myself I was just three months ago.

    • Morgue, all I can say is forget those people. They clearly don’t experience the same thing that we do. We aren’t dependent like addicts. We need it for functioning and health, like heart patients.

  4. It was hard to accept that I would always need meds. i think it took my parents longer to realise that I would too – because they live so far away. but it’s a small price to pay – for now at least – to be able to function day to day.

  5. I don’t even think about going off of my meds. IT’s impossible for me even though I had an idea once about having a child.

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